WELCOME TO SHINE WITH IZZY
"Shine with Izzy" is a non-profit initiative inspired by the courageous journey of four-year-old Izzy, who is bravely fighting Diffuse Intrinsic Pontine Glioma (DIPG). Characterized by her infectious blonde curls and bright blue eyes, Izzy's battle highlights the urgent need for action against this rare and incurable brainstem tumor. Our mission is to actively fund critical research initiatives, provide essential support to those currently battling DIPG, and honor the memory of those who have earned their angel wings.
Our Story, Our Journey, Our HOPE
Upcoming Events
Sapori Di NapoliSat, Nov 15sapori Di Napoli
Thanksgiving ParadeSat, Nov 22Lake Mahopac
SNOWFLAKE SPECTACULARSun, Dec 07Putnam County
"DIPG is the only Pediatric Cancer with NO cure. It strikes about 300 children annually, and most do not survive longer than a year. There is currently no cure, and the standard treatment, radiation, has not significantly changed in nearly sixty years. Pediatric cancer is grossly underfunded, with most research money coming from donations. The government places most value on researching cancers such as breast, prostate, and lung, which receive the most funding. Only about 4% of the cancer budget is allocated to childhood cancer research".
Our Story, Our Journey, Our Hope
A LETTER TO OUR SENATOR TO GIVE KIDS A CHANCE ACT
Our Team.
Introducing the dedicated team behind "Shine with Izzy," a non-profit initiative committed to making a positive impact and funding DIPG research. Our team comprises four healthcare professionals:
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Jennifer & Tim: Izzy's mother and father, providing invaluable knowledge from NYC.
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Lindsey Rush: Izzy's aunt, from Pittsburgh.
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Nicole: A colleague and family friend, joining us from Georgia.
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Carroll: A dear friend and colleague, also based in NYC.
Together, we are dedicated to promoting DIPG cancer awareness and support for families through our non-profit endeavors.
Our Story
"Shine with Izzy," a non-profit initiative born from the courageous journey of a four-year-old girl, Izzy, whose infectious blonde curls and bright blue eyes as she fights DIPG.
Izzy's path took an unforeseen turn on August 14, 2025, when a subtle observation by her parents—a slightly crossed eye—led to a life-altering diagnosis. What began as a parent's gentle concern quickly escalated into a series of urgent medical investigations. A CT scan revealed a mass on her brain stem, and the subsequent MRI confirmed the devastating news: Diffuse Intrinsic Pontine Glioma (DIPG). This is an aggressive, RARE, and incurable pediatric brain tumor, a reality no family should ever confront.
Following six weeks of palliative radiation, Izzy continues her valiant battle. Her family, driven by an unwavering commitment, is tirelessly exploring every avenue, including clinical trials, in the hope of slowing the tumor's progression and extending her precious life.
Jennifer, Izzy's mother, has dedicated her career to pediatric oncology since the age of 18. She has a decade of experience as a nurse and nurse practitioner, providing daily care to patients like Izzy. Her commitment extends to volunteering at cancer camps, running marathons, and participating in numerous pediatric cancer fundraisers. Tim, Izzy's father, has served with the FDNY for two decades. They live in the NYC area with their two younger sons, Lucas and Liam. Together, they are united in Izzy's fight against DIPG.
"Shine with Izzy" stands as a beacon of hope, founded on the profound belief that no child or family should navigate the complexities of a DIPG diagnosis in isolation. Our mission is two-fold: to provide unwavering support for Izzy in her fight, and to extend that same hope, resources, awareness, and advocacy to every child and family grappling with DIPG.
Our Pledge
We strive to bring hope, love, joy to children and families facing the challenges of DIPG pediatric cancer. Our mission is create a supportive environment filled with positivity while ensuring that all donations are directed towards vital cancer research for DIPG. Join us in this important endeavor and help us make a meaningful impact in the fight against this disease.
Awareness generates funding, and paves the way to a cure.
Our mission is to support research and assist families facing the challenges of DIPG.
At Shine with Izzy, we are committed to developing impactful initiatives that empower families and increase awareness of DIPG cancer. Each collaboration is thoughtfully designed to offer support, provide essential resources, and foster a sense of unity families affected by childhood cancer.
Research Initiative
Progress through Awareness
We are committed to funding research initiatives aimed at finding better treatment options for children battling DIPG. Together, we ensure that their voices are heard and their needs are prioritized.
Stories
Through our foundation , we share inspiring stories, connecting with visitors on a deeper level and showcasing the love and hope behind our mission.